Another study!

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Originally uploaded by tibbsmamatibbs

We recently went for another Barium Swallow Study. We wanted to verify whether or not mommy was right to continue with her thickener in fluids. To bring you up to speed, the last study was done in February, 2012. The report said that we could place R on thin liquids with no added thickener. Following orders I discarded all thickner for a good while. Meanwhile, she would still choke and there were a couple of periods where she didn't want to consume any liquids at all. She started having a wet sound all of the time and she wouldn't ever cough. I decided to once again put her on the thickner, but didn't use it with milk or smoothies. I hoped to not hear any residual fluids clicking when she spoke. I didn't know how to tell the difference if she was sick or just wet from drinking. Anyway, the test just performed last week confirmed that she was still penetrating and to keep R on a nectar consistency. They said that it wouldn't be something she needed for the rest of her life, but that with therapy and other tests we might have more answers to why she still needs thickener. Our next step is to find ENT for peds here in San Antonio and see if we might get more answers and avoid going back and forth with diagnosis. Otherwise, R is doing great and is happy we are done with the swallow study! It was no fun and she was hungry and thirsty and what they gave her was disgusting! She is a trooper.

Hello!

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Originally uploaded by tibbsmamatibbs

Just wanted to say we are doing well! Today, it is raining and it won't let up, but we went for a walk in the drizzle and Taylor rode his bike with his rain boots on. We pulled out the rain shield for the double stroller and got the kids out for some fresh air after we played a couple games of Jenga. No sense in grumbling about the rain. It gets tricky sometimes but you choose your adventures! Anyway, in case you wanted to know, this pic was taken when Casey and I had a date night in Austin. Happy Saturday!

Wait for it...

MVI_1116 a video by tibbsmamatibbs on Flickr.

He is daddy's boy!

The Alamo

We decided to take the kids for an afternoon of history and social studies.  We did a quick children's version, you must understand, with a stop in the gift shop area where there is a complete rendition of the Alamo in miniature form with people and bloodied officers and ladders the they used to scale the walls.  You can even see the miniature guns and weapons of all sorts if you look.  Anyway, we read some abbreviated history to them and walked through the halls and saw a room for their "sick bay," and they were showing a movie which would have been fun except you have to pick and choose, would you rather disturb a group of really interested tourists, or just go again when the smaller two are much more excited about historical showings.  It was really fun with all of the people swarming and there was even a man yelling outside the front courts about injustice of something.  They had carts selling ice'es and horse drawn carriages parked all around the perimeter.  Boy did we see a lot!  We even went to the River Walk after and~ or was it before... well anyway, we saw loads of people and crazy things.  For example the man across the river from us was dressed up in some sort of mascot outfit yelling about something and then we saw the river cruises with crazy tourists.  It is so nice to sit and relax in front of all of the activity and know that you have all the free entertainment you could possible want right at your fingertips.  

Well it's been a doggone long time!

This post is for my mother, father, and my grandmother... They will go bonkers, I know at the goofy signage here.  

 This is for the welcome area when you land the new RV at the RV parks you frequent.

This is a cute little sign that you can put up in the RV.  I thought it was slightly above "Winnie the Pooh."

You wouldn't believe it!

Well, Taylor, as always, made us laugh tonight when he came out of his room to inquire about the medicine we gave Reagan.  "You said it would help her sleep, mom, well... I can't sleep, so..."  "No son, the medicine was for her cough."  Out walks Reagan from the room, considering if there is something going on, she has to be there.  "Mom," Taylor says, "I can't sleep and I am so tired even in the morning I don't know what to do, nothing works."  Taylor had already told me that his throat hurt a little hoping he would get some medicine too.  But what he really thought the meds were for was for sleeping and he wouldn't lay up!  Casey, matter-of-factly told me that I should just give him a placebo.  So, considering the genius of his idea I whipped up my NyQuil Placebo.  A medicine cup with white grape juice and water mixed with red food coloring.  I filled it to the top and since I didn't want it to spill I gave some of it to him in a syringe and the rest in the drinking medicine cup.  Would you know he was out in less than 5 minutes.  I wonder if tomorrow he asks for that same medicine?

In other news, Taylor is going to be entering in his first kids run.  It is a 1/4 mile so tonight, we started training.  We did some stretches before our run, I taught him how to feel his pulse, we did some more stretches and I taught him to run quietly instead of sloppy and loud.  I tried to teach him how to have correct breathing and after listening to him in through the nose, out through the mouth a couple times I told him if he continued to do it so fast he was going to hyperventilate!  He appreciated the coaching and said his knees didn't hurt as much and he really liked running!  There were some people out on their driveway and they yelled at Taylor and told him how great of a runner he was!  Impressive!  He loved it!  I had to tell him at one point to not sit down when he was tired but to walk it off and he, well, let's just say, he was tired!  Too cute though!  I can't wait for him to participate in his first run and get his own t-shirt and entry number!  I love it!  I can't wait to take pictures either!  Sorry for the lack of entries as of late.  My camera has died and I haven't remembered to plug it in.  I will take video's of the kids and update with pictures soon.  All else is well!